Author: Syharat, Connie

Just One Small Step

Photo of a hiker standing on the top of a rocky mountain top.

By Yamila García

I began the most important path of my life at an age that was not ideal, in a country that was not mine, in a language I did not know, and with total ignorance of the system and everything that surrounded me. I started this path without thinking too much, just taking a small step and signing up for English classes at a community college. That small step I took was the beginning of something that almost took me naturally. I always say that sooner or later, life ends up putting you where you need to be, and indeed, it did just that with me!

When I look back, it feels like 20 years have passed since that “first step”. However, it was less than 5 years ago. In an attempt to reduce uncertainty, I always had the impulse to plan everything, from today to the last of my days if possible. However, almost instinctively, on this path, I only focused on completing the next step, nothing more than that. The next homework, the next lab, the next midterm. This is how I completed weeks, months, semesters, and years until I reached this point where I just graduated. This is a goal that I was never able to even set for myself because it seemed too big, too impossible. However, I was able to achieve it because I never looked up to see the top of the mountain; I always kept my eyes on what was closest.

I think this is the first time I’ve done something this way, without letting myself be overwhelmed by the immensity of the great goal. My therapist was the one who helped me incorporate this tool so that things were more manageable for me and anxiety didn’t block me. It seems like a simple concept, but applying it after so many years of operating in an “all or nothing” mode takes a lot of effort and commitment. But everything is possible, we learn from everything, and whenever we believe that we cannot do something, we must remember that maybe we just cannot do it in a certain way, but that does not mean that there are not other ways that do work for us. In my case, it was breaking the big goal into smaller, more manageable tasks, without looking further than a week into the future.

Choose Empathy

Small strips of white paper with phrases like "are you ok," "be kind," and "awareness" are scattered across a brown cardboard background.

By Yamila García

People only see the result of the processes we go through. These experiences can be extremely good or bad, but people will only notice when those feelings make their way out and alter our behavior. We cannot see more than what the other does or says in their interaction with us. However, many of us go through the same difficulties throughout life; we face illness, economic problems, family problems, work conflicts, etc. We all know that when there is a serious problem, it is difficult not to think about it and focus on something else. We also know that when someone we love is going through a health problem, for example, life begins to revolve around that. Sometimes, it happens that the concern comes from not being able to cover expenses, or in other cases because we had an argument with someone important to us, and one really feels stuck until the problem is solved. 

So, if we are all similar in that way, why can’t we understand each other more? Why, if I see someone who suddenly changes their behavior or way of acting, can’t I think that they are going through a similar situation? One of those that I’m sure I also experienced and had similar effects on me? I think we all know a lot about what human beings feel and that we have many tools to understand each other, but that is not enough to do it. At the first change, it is easy to observe rejection, not compassion. Precisely, this is something more added to someone who already has a lot on their plate. 

Perhaps my own experiences and my analytical way of being made me much more aware that behind every action there is a cause, something that is affecting the person and that they are not being able to handle. I just want to say, pay more attention, don’t react with rejection. Try to put understanding and empathy above all. Everything would be much easier that way. I know it’s not easy, but once you start doing it, it becomes easier. And many times you can be the one who gives the only kind word that the person in front of you has heard for weeks. You never know the battles others are fighting, but you don’t need to know. You just have to be kind, and you could be saving someone else’s day.

Power-Saving Mode

A person holds a cell phone showing a low battery.

By Yamila García

I blocked my emotions, and that’s why this post is taking me longer than usual. When my emotions are raw, writing becomes an extension of them—something that almost comes naturally, a new habit and a new way of channeling what happens inside me through words. It’s been new since I started writing for Include and discovered its therapeutic effect. I realized that what I often couldn’t express verbally, I could let out in writing. However, when writing, talking, and anything else aren’t enough to manage my emotions, I sometimes end up shutting down—turning off those emotions that make me so uncomfortable. I have this false feeling of being able to continue “functioning,” but the cost is high.

When everything feels impossible to handle, and I find myself drowning in emotions I don’t know how to deal with, I completely disconnect from what I feel. I uproot what I can’t modify and continue functioning in a kind of “power-saving” mode. However, as with electronic devices, the “power-saving” mode implies losing capabilities. I “function” and do what I have to do, but deep beneath the surface, a storm is raging that I have tried to contain with a Band-Aid. Of course, whenever emotions remain in the background and are not channeled in a healthy way, they magnify and seem to agree to come together, destroying everything in their path as a form of protest for having been ignored. They unleash an explosion that, in opposition to the “power-saving” mode, consumes every last drop of energy in minutes.

I’m trying to learn to reconnect before the chaos. Writing helps me. I may not be able to talk about what I feel yet, but I can talk about what I know I’m doing. I know that I am hiding from my own emotions and that I want to learn to navigate them differently. I don’t believe in magic solutions, but I do know that when I manage to reconnect this time, nothing will be the same. I am close to achieving something that I have dreamed of all my life, and while for others, it may not be so big, my life took many turns before reaching this point. I wrote this last sentence two days after I wrote the rest of this post.

 

Celebrate Yourself

A hand holds a sparkler that is sending out a halo of sparks in front of a dark background.

By Yamila García

Self-pressure is something you learned, not something you were born with. The obvious differences I’ve had since childhood and the subsequent reactions from people made me keenly aware of how others perceive me. That’s how I learned to demand and pressure myself to be “enough” in the eyes of others, as if there were a way to measure what “enough” truly means. However, nothing I did was ever sufficient in my own critical view. Thus, I spent all my years trying to compensate for the negative perceptions I knew my differences caused in others. I fought hard to reverse that, but the more I struggled, the farther I moved from achieving it. The more I learned and accomplished, the more distant I felt from that approving look that I so desired.

The reality was that the first person who disapproved of me and didn’t consider me enough was myself. I know that the gaze of others influenced the way I saw myself too. Although I allowed myself to be authentic in many aspects of my life, on the other hand I sought approval by trying to be as efficient and capable as possible. And in that search I trampled my feelings and denied the importance of who I am. I lost the battle when I gave others the power to define my value. I stopped loving myself for thinking that I had to be efficient so that others would think: well, she may be weird but at least she’s useful. Because I learned that people are often kind when you are useful to them. But I am much more than useful! How sad to be like this really. Measuring how much you respect the other according to how much they can contribute to you.

I was always enough but I lived many years without knowing it. I was enough even the times I felt like I was nothing. I am enough, beyond the gaze of others, beyond my fears, my differences and my skills. I am enough and valuable because I exist, live and fight day by day. Don’t let anyone interfere with your own thoughts about you. I don’t do it anymore. We all have a lot to celebrate about ourselves even if others don’t see it. Only you can give yourself the value you have. No person, achievement, goal, or event can increase your inherent worth; what you are, you already have within you. Celebrate yourself!

Intensity at the Extremes

Multi-colored sound waves form mountains and valleys in front of a black background.

By Yamila García

Colors, textures, smells, and other sensory stimuli can cause me great discomfort but also a lot of joy and pleasure! The intensity with which I perceive the world around me works both ways. These past few days walking around campus were a completely pleasant experience. The sun made the autumn colors shine even brighter, and the leaves on the floor were so crunchy when I walked on them. Inside me, it was like a party. I felt the same kind of joy I feel when I receive good news or achieve something I really wanted. The joy was intense, making me walk around smiling, wanting to stay and contemplate such beauty all day.

This also happens to me with certain music. I repeat the songs over and over again because the joy feels like multicolor fireworks inside me (of course every piece has a different combination of colors, shapes, and textures). I have the feeling that I am completely full of joy and that I don’t even have “room” for a little more. This is also what happens to me with art. I feel the paintings or sculptures with all my senses. It is as if I can “live” them and be part of them. They make me smile and cry, giving me joy and happiness. Inside me, it feels colorful, restless but happy.

This intensity and this “ability” to feel with my whole being, with my body and my mind, each of the things I experience, is a double-edged sword. I enjoy simply walking among colorful trees much more than many (in fact, many don’t even notice the beauty around them), but the other side of this ability sinks me deeper than you can imagine. Negative sensations become larger and more painful than they are for other people. Everything becomes a dark tunnel with almost no light. I feel discomfort on my skin and go through the entire process with chills. During this time, I often lose perspective, the ability to be objective, and to use my past experiences to intervene in the present. Whenever I go to this side of my wide range of emotions, it feels extremely lonely and isolating, and very painful on the skin and soul.

The middle of the range is possible, but with so much intensity at the extremes, it often feels empty. Empty is not all bad; sometimes it means peace, other times boredom, but either way, it is better than the negative extreme and that is appreciated. Although it is true that it is difficult to deal with that part when you are so used to feeling so intensely.

More Than Enough

A woman wearing jeans walks into an airport terminal, pulling a rolling suitcase behind her.

By Yamila García

I don’t travel a lot, but I’ve been to a reasonable number of airports—awful places for a neurodivergent. The only “good” thing about them is that the experience is so exhausting that as soon as I get on the plane, I fall asleep in 2 seconds. At first glance, many of the airports I’ve been to look like inclusive places. They showcase their commitment to accessibility and making everyone comfortable, displaying logos for programs related to supporting physical and mental difficulties in travelers everywhere. However, when you try to access some of those accommodating services, you encounter even more struggles. In general, there is only 1 terminal that offers these services. If you’re not close enough, you have to traverse the entire airport from one end to the other, encountering things that make you uncomfortable along the way: noises, shiny screens, lights, confusing signs, people scattered about, everyone either making phone calls, arguing with airport staff, or simply rolling their carry-ons on the striped and slippery floor, the voices on the speakers announcing boarding for the planes, and the mingling smells of all kinds of food.

Once you arrive, you realize that the sign is larger than their genuine willingness to accommodate you. I don’t think anyone expects a spa experience at the airport, but if they’re genuinely trying to assist people, just a quiet, small room per terminal would be more than enough to help reduce stress while waiting for our flight. Just a place with less noise and softer lights could be of great assistance. It would serve as a shelter for me, a place to escape the suffocating airport environment.

Many times, I think they are more concerned about appearing inclusive than actually being inclusive. It’s not that difficult to consult the people who would use these services to determine what works for them. The problem, not only at the airports, is that many of the individuals designing “inclusive and accommodating spaces” have no understanding of how we feel because they are not actual users. Once again, it is evident that neurodivergents need to be involved in these processes and share our experiences as much as possible so that the way we live, feel, and work is not a mystery to anyone.

All About Appearances

By Yamila García

Excuse me for not looking you in the eyes; it feels more comfortable if I don’t. And if I don’t, it’s because I know you and I trust you. That’s why I feel free to be myself, and I don’t force myself to do something that makes me uncomfortable. When it comes to people I don’t know, I know I have to make a good impression, do what is expected of me, and appear as neurotypical as possible. Otherwise, it could hurt me a lot if they see how different I am. If it is something work-related, many do not want “problems”; they want people in uniform on the outside and inside, nothing that is out of the norm. If it is something social, no one wants to be seen near someone considered strange in the eyes of the rest. However, it has happened to me that I have met people making a good impression, and then when I showed who I really am, they have stayed by my side, and in some cases, they were also trying to make a good impression. All about appearances, that’s the social norm. You have to pretend, fit in, and follow the herd, and once you come into trust with the other, you free yourself, and those who have to stay, stay.

If I ever put on the neurotypical uniform, it was because society demanded it to allow me to be part of it. It is not a free choice, no matter how much we want to stop masking. It’s simply survival. Putting on the neurotypical uniform gives us something that many of us neurodivergents lack: acceptance and a sense of belonging. Even though on the outside we may disguise ourselves a little and look like neurotypicals, on the inside we are still neurodivergent. It feels good, for a while. There is a false feeling that we can act neurotypically, and it won’t turn out that bad. However, the energy consumption of pretending to be someone else is not the same. And then, the social battery runs out sooner. I don’t want to wear the neurotypical uniform; you want me to wear it. Even if you don’t say it directly, you make it clear when you leave aside those who are different, when you look strangely at those who behave or dress differently from the pack, and when you consider everything that is different from you as a problem.

Just Breathe

A multi-colored pixelated image meant to represent overwhelming noise and other sensory input.

By Yamila García

I want to bend over, curl up and cry. But I can not. That is not right. I don’t want anyone to feel bad or guilty for me. I can’t stand the noises anymore. People move too much. No, it’s not too much, it’s normal. It’s just too much for me. My heart is going too fast, I feel it strong in my chest. I want to teleport home. I want to close my eyes and be there automatically. I don’t want to feel anything anymore. 1 1 2 3 5 8 13 21 34 55 89… Counting still works. Breathe, breathe and don’t think. I kept counting. 1 1 2 3 5 8 13 21 34 55 89… come on, keep going… 144 233 377… yeah, I can handle it now… ok, I’m breathing slower, that’s a good sign. Now act normal. My face sure looks angry. Try to talk like this so no one notices that something is happening. But I do not want to. Better stay like this just in case it happens again. Little by little… 1 1 2 3 5 8 13 21 34 55 89 144… Come on, keep breathing. Surely people notice my breathing… breathe slower. My heart rate is going down a little. I know it’s going to happen, it always happens… I just don’t have to think too much. Just breathe and count… Now maybe I can talk. Try to talk.

Something like that feels like being overwhelmed for me, after enduring stimuli until I reach the limit. It’s not as easy as: “don’t pay attention to what’s happening.” Many of the things that surround us are perceived in different ways and what for some is nothing, for others is overwhelming. That’s why I write this, because it’s real for me. Because after having gone through a challenging time, if you put me in front of various stimuli, chances are I will feel that way. I know that what I write exposes me and shows my most fragile side, but I don’t care, because just as I know myself, I know that I have been able to handle things that others don’t have to face. I know that I have done a lot with more difficulties than many people and I know that the more we share how we neurodivergents perceive the world, the more education there will be about it so that we can really have a more inclusive world for us.

A Fire Burning on the Inside

A fire burns in the center of a black background.

By Yamila García

Learning to mask helps us survive. Masking helps us hide who we truly are from the world, showing them what they want to see. Since we were kids, many of us did it naturally, often without even knowing why we did it. Over time, we learn that, no matter how different we are from everyone else, we can always put on a mask to hide who we are and how we feel. However, after many years of relying on these “masks,” we might start thinking that simply pretending can handle everything that comes our way.

We might think we’re doing fine, that people don’t notice our differences, that we’re good at masking. But we can’t avoid everything that’s happening inside us. Masking just makes us keep going and seem like everything’s okay, but deep down, there’s a fire burning. Gradually, masking gets tougher and less convincing. We keep holding on, resisting, and doing our best, but it stops working, and we’re left with no energy. Pretending has taken everything from us. We end up utterly exhausted, unable to function as we normally do.

Masking “protects” us from the outside but burns us alive inside. It leaves us alone, without the strength to do anything more than hide in some corner, some hole in our house with little light, no noise and that is small enough to feel that at least we have some control. I know many neurodivergents are trying hard not to mask now, and I totally admire them. But I never learned how to live without it. I wouldn’t even know where to start. But I think I need to unlearn this harmful habit that denies my true self and doesn’t let me take care of my needs. It leads me to drain myself, isolate myself, and forget to care for myself.

Full of Contradictions

A white canvas with bright yellow paint covering the bottom half.

By Yamila García

All humans are full of contradictions, yet those of neurodivergents seem to be questioned. However, all these contradictions are perfectly fine. We don’t need to justify them; they are an integral part of our humanity. Trying to understand them is also not necessary, but sometimes it can help us better deal with them. Contradictions arise from many factors, one of which is the interplay between our essential nature and the experiences and adaptations we undergo throughout our lives. Nobody is 100% logical. We are humans, not robots. Therefore, we’ll always have clashing views and feelings.

I have many contradictions myself. For example, noise makes me sick; it distracts me and generates discomfort. However, I grew up in a big city, and today, being far from it, noise is also comforting in some way, reminding me of “home.” Brightness usually hurts me. Going out in the morning and seeing sunlight is painful because of my sensitivity to light. However, I find it comforting to feel that warmth on my skin. Like many neurodivergents, I also have soothing behaviors; I rub certain types of fabrics, which helps me focus and calm down. But sometimes, I do it so much that my hands hurt, and I get cramps. Being around many people makes me anxious, but at the same time, if I don’t see people, I feel isolated. As you can see, even in simple things, we can identify contradictions, but it’s important to know that we don’t have to be any other way. These contradictions are acceptable, and there doesn’t need to be a logical explanation for them.

Many times, when we ask for accommodations, people may say, ‘If you can do this, how come you can’t do that?’ For many, those two things being compared may seem the same. But for neurodivergents, the scenarios and the environment in which we have to function have a significant impact on what we can do and how we can do it, for various reasons. And yes, we also have our contradictions, just like everyone else. People often look for a ‘logical’ explanation for how we perceive the world and operate. However, it’s paradoxical to ask someone with a different view and logic to explain their perspective, knowing that it differs from ours. But also, it’s important to understand that such logic is not always necessary.