By Yamila García
I was recently part of a gathering that I wanted to enjoy, even though I knew some aspects would be difficult for me. I knew there would be no plans or much prior organization, not even a clear time. I also knew there would be a lot more noise than I’m used to. As I write this, I think about how I said I wanted to be part of this, but now I’m not really sure if I truly wanted to be part of it, or if I just wanted those who participated to know that I care about them; that I’m interested in spending and sharing time together.
When I try to explain what happens to me, I’ll say it’s like I have a gallon of energy assigned to me each day. On a normal day within my routine, that gallon usually lasts the entire day, but in other circumstances, it runs out much sooner than I’d like. My gallon is consumed more quickly when there are no concrete plans, when plans change, when there’s a lot of stimuli, or simply because I’m stepping out of my routine. During the gathering, I was “fine” for a few hours, and I say that because I think being “fine” just meant having enough energy left to mask and not despair. And yes, during that time, I was happy to be part of it. However, the moment the last drop of energy was consumed, I felt an overwhelming urge to leave—I wanted to simply disappear and teleport home. If that wasn’t possible right then, I was overcome with frustration. Although I tried to hide it, in that urgency, I could have come across as rude.
When I’d finally left, I found myself crying inconsolably in my car, as if I needed to expel everything I had felt and kept inside. I always end up trying to figure out if it’s okay for me to expose myself to those situations or not. Because not doing so would imply I only crave isolation, and I don’t want that for myself either. I try to respect my needs and boundaries; I’ve worked hard on that and continue to do so. But it’s difficult to find a healthy or correct boundary—if one even exists. To what extent should I avoid discomfort? Is that really beneficial for me? I feel like there’s a blurred area that keeps me from clearly knowing when to prevent and when to allow discomfort, and I think that’s still the hardest thing for me to manage as a neurodivergent person.